A Writer's Life Interrupted #crohns #uc

Can you blog from your phone?

I am going to try.

Crohn's/UC are debilitating autoimmune diseases that are quite painful. I use Remicade because I've failed everything else. The whys aren't important.

What IS important is my family, my daughter and my son. This is my story for them.

I got up this morning paranoid as usual, scared to go for treatment and scared not to as well. It always turns out fine but I get shaky anyway. The nurses are outstanding, they are fun, happy, and so helpful. I know it is foolish to be frightened, but my blood pressure is high 

This time it only took one attempt to get the needle in. I've had as many as four. Sometimes I look like the walking wounded when leaving.

Hum. They haven't brought me my coffee yet.

That's my machine. (look below), it beeps every 15 minutes. They take blood pressure readings and my temperature. If all is good they up my meds.

Still no coffee.

My hand hurts when the numbing stuff wears off, but it's not too bad.  Blood pressure is lowering, but it is important not to have it get erratic. That often happens to me and it has something to do with dehydration.

That's one of my nurses. She's awesome and knows more about water rights, a great concern for Californians, than anyone I know.

My pre meds are kicking in and they make me tired. I tell myself everything will be OK and it will be fine.  Only a few more hours to go.

Don't be afraid of transitioning to Remicade my daughter. It does have side effects, but it is so worth getting your life back. My only concern is that you're so young, but hell, we gotta take what life throws at us.

Love and hugs,

Mom