As a writer I use my words to express how I feel. Expressing myself verbally is far more difficult. A fact which is lost on my doctor. I become a blithering idiot in front of her. I start apologizing immediately. Yes, it's me. So sorry to trouble you again. I could slap myself.
Having MRSA sucks. You live on antibiotics and as soon as you are done you are given one free day before you wake up with it again. I have lost count as to the times I have experienced such disappointment in the last few months. I have taken bleach baths, soaked my hands in a bleach solution, I wear band aids to try and stop reinfection, I've slathered antibiotic cream over my fingers and a hundred other little things that are supposed to help. Nothing does. Plus, it hurts. A lot. I am currently taking no medication for Crohn's disease. I can feel it waking up and it frightens me. I cannot express how keenly I feel the loss of those years when I was so sick. I missed my grandson's baseball practices and games. Now one of them is in college and the other one is a junior in high school. I have been trying to reconnect with all my grandkids so I can take them gold panning, swimming, fishing. The last three years has been like being reborn. I am very grateful to God for having experienced it. I want to reiterate. I am grateful. I knew Remicade came with side effects one of which was infection and the other cancer along with a host of lessor evils. If I was gonna get one of the big ones I'd rather have infection. But I don't know that for sure yet. I have been on one round of regular antibiotics, one round of heavier antibiotics, and one round of heavy artillery antibiotics. None have worked. The pain is an intense throbbing and it is in four fingers. It is the ring finger of my right hand that hurts the most. I had a tough time sleeping last night. To my IBD readers I want you to know if the worst happens and I can never go back to Remicade I am still grateful for the time I had. It was worth it. Every second. Even the eczema itching was worth it. Even the micro flares were worth it. It is time to pull up my big girl panties and get over the disappointment of MRSA returning. I see the doc tomorrow and she will take it from there. I have to admit I was thinking of utilizing a holistic healer so this little reoccurance would not be on my medical records, but common sense won out. I have to get this under control if I have any hope of using Remicade again. I read online to soak your finger in baking soda solution. It can't hurt so I will give it a try. Thanks for listening.
Louann
2/27/2016 08:06:00 am
Prayers are always welcome. TY
Denise
2/27/2016 08:08:20 am
Hang in there. You are in our prayers. Comments are closed.
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