We are hanging out at the hospital far too often. The husband had just gone in to do his blood work for his annual exam when the lab called and said we needed to get him to the ER right away. Apparently, his platelet level was 'critical'. The boys came over and between all of us we got him to the hospital because as far as the husband was concerned, he was all right!
His all right was all we heard while he was getting transfusions and super high doses of methylprednisone to stop his white blood cells from killing his platelets. By Sunday, he was getting out of the hospital come hell or high water. So, his new doctor, who works out of the chemotherapy center at our hospital, and who is familiar to me because of my sister-in-law, was where we ended up on Tuesday. Apparently, the Prednisone isn't working but it is holding his platelet levels stable for the time being even though they are still critically low. There is a new experimental drug they are trying to get approval for which, hopefully, will get him back in the pink. In the meantime, I turn him around twice a day to check for bruising. And when I say bruising, I mean purplish bruises that would scare the hell out of a normal person. If his eyes or nose starts to bleed and we can't get it to stop, then we are to take him back to the hospital immediately.
My WIP attempts to answer the question, "Is God Capricious?" Could he or she just be a nasty teenager who invented a video game and we are his or her pawns? You gotta wonder sometimes. The entire year of 2018 has been one health emergency after another to the point of ridiculousness. Who has a family that is riddled with autoimmune diseases and let us not forget heart disease? Does my little teenager think this is funny?
What about cancer? It is insidious, a desperate attempt to kill you while it grows unsuspected within a trusting body striking children and adults and the elderly with impunity. Are our coping skills being tested? It's not like this family hasn't been put through hell because it has. We've watched loved ones die from neglect we could do nothing about, others die hideous deaths that no one, with few exceptions, deserve. I get that all families go through things like this, but does it have to be so damn intensive?
In Gemini Rising, book 3, The Word, I struggle to answer these questions. Maybe that's why we are all facing challenges. If you believe in destiny, the quicker I finish this book the healthier my family will become.
I am so out of here.
#Iamwriting
#crohns
#idiopathicthrombocytopena
#dysautonomia
#cancer
His all right was all we heard while he was getting transfusions and super high doses of methylprednisone to stop his white blood cells from killing his platelets. By Sunday, he was getting out of the hospital come hell or high water. So, his new doctor, who works out of the chemotherapy center at our hospital, and who is familiar to me because of my sister-in-law, was where we ended up on Tuesday. Apparently, the Prednisone isn't working but it is holding his platelet levels stable for the time being even though they are still critically low. There is a new experimental drug they are trying to get approval for which, hopefully, will get him back in the pink. In the meantime, I turn him around twice a day to check for bruising. And when I say bruising, I mean purplish bruises that would scare the hell out of a normal person. If his eyes or nose starts to bleed and we can't get it to stop, then we are to take him back to the hospital immediately.
My WIP attempts to answer the question, "Is God Capricious?" Could he or she just be a nasty teenager who invented a video game and we are his or her pawns? You gotta wonder sometimes. The entire year of 2018 has been one health emergency after another to the point of ridiculousness. Who has a family that is riddled with autoimmune diseases and let us not forget heart disease? Does my little teenager think this is funny?
What about cancer? It is insidious, a desperate attempt to kill you while it grows unsuspected within a trusting body striking children and adults and the elderly with impunity. Are our coping skills being tested? It's not like this family hasn't been put through hell because it has. We've watched loved ones die from neglect we could do nothing about, others die hideous deaths that no one, with few exceptions, deserve. I get that all families go through things like this, but does it have to be so damn intensive?
In Gemini Rising, book 3, The Word, I struggle to answer these questions. Maybe that's why we are all facing challenges. If you believe in destiny, the quicker I finish this book the healthier my family will become.
I am so out of here.
#Iamwriting
#crohns
#idiopathicthrombocytopena
#dysautonomia
#cancer
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