A Writer's Life Interrupted #crohns #uc #ibd

Now that I've been off all meds for Crohn's for 7 months I can feel myself getting weaker and the pain has increased. To go from feeling pretty normal back to this really sucks. I ended up in ER last Monday and it was a good experience. The doc remembered me from when I had sepsis and he didn't question the seriousness of my condition.

He asked me what I needed and I said morphine, anti nausea drugs, and anti diarrheals. Within half an hour or even less I was hooked up to an IV with medication dripping. My bloods came back normal so they filled me up with fluids and I could go home. This made me feel so much better as now I know what to expect should things degenerate again which they will if I can't get on any meds. The ER doc called my GI for authorization to do a prednisone blast, but he said no.

​I have an appointment to see my GI on the 16th where we will discuss my next step. I have to say with the exception of one finger the others are looking pretty normal as long as you don't look at the nails. I've never been much of a nail person because I type so much so it is all OK. I have to say it is really weird to be without medication. In the beginning, when I felt good, I was happy and thought everything would be fine. As the months go by it is not so good. I miss my Remicade.