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A Writer's Life Interrupted. #crohns #ibd

2/11/2016

 
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God bless my little granddaughter.

That is exactly how I felt yesterday after I asked my doctor what to do to stop these infections. Her reply of stopping Remicade was not a good option. Actually, it shouldn't have been an option at all. But she is right. If I can't get it under control I will HAVE no other option.

So, I am considering it. Needless to say it scares the shit out of me but even scary stuff has to be faced.

Damn.

Turns out bleach baths really are doable. I took one last night. I smelled a bit like a swimming pool but no one minded.

And of course I am due for Remicade this week and the doctor said two weeks before treatment due to infections. Terrific. Prednisone is an option but not yet. I hate Prednisone. Just so you know. It drives me bonkers.

Yesterday I was so depressed. Until a friend of mine sent me a happy face. Literally. She beams. TY Bettysue.

I am finishing the complete book of The Foundlings of Nirvana. As I have said before this is the only thing I have self published and let me tell you, kudos to self publishers.

I am off to soak my fingers and think about stopping Remicade. I really don't think I am there yet. I still have hope. And, remember those rubber finger tips? Ha! Those will protect the fingertips so I can push paper and type. Not sure about the sore. Yet. Where there's a will there is a way.



Jonathan
2/16/2016 04:56:09 pm

Have you tried Humira? That's what they put me on after remicade and it worked well for a few years.

Louann
2/16/2016 06:01:08 pm

Hi Jonathan. I failed Humira after a few years. Nothing has helped like Remicade. I honestly feel like I got my life back. I hate to give it up and go back to the dark place again.


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